Last year, I did some work with the wonderful people at the Arthritis Research Centre of Canada, interviewing them about a terrific new opportunity to help people with arthritis keep working. I was thrilled when they approached me about writing an article for their spring newsletter. Again, the subject was work. I told the story of my dreams, my studies and my career and how I’ve made it work with RA:

“Nine years ago, I couldn’t imagine I would ever fulfill my lifelong dream of writing a book, and becoming an advocate for people with rheumatoid arthritis (RA). Nine years ago, I thought my life was over. But I get ahead of myself.

Growing up with juvenile idiopathic arthritis (JIA) in the 1970s in Denmark meant spending a lot of time in hospitals. There were no effective treatments for JIA and this led to my early disability. I received three “gifts” when I was 16. The first two were hip replacements, making it possible for me to sit up for the first time since my hips fused two years earlier. The third was a power wheelchair so I could go home after a four-year hospital stay. Finally free, I joined my friends in high school and tried having as normal a life as possible.”

You can read the rest of my article in the Arthritis Research Center of Canada Spring Newsletter. And while you’re there, I highly recommend signing up for their excellent newsletter (whether you’re Canadian or not). These people do really good work.

One Response to “Arthritis Research Centre of Canada Newsletter”

  1. Although health care professionals can prescribe or recommend treatments to help patients manage their rheumatoid arthritis, the real key to living well with the disease lies with the patients themselves. Research shows that people who take part in their own care report less pain and make fewer doctor visits. They also enjoy a better quality of life.


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